Flames assistant GM Chris Snow dies from ALS complications
Chris Snow died Saturday night, but he left a legacy that his family, the Calgary Flames and the city will never forget.
He was a fixture in the Flames' organization, a devoted father and husband and a driving force for ALS research.
After four years of fighting and defying the odds of a terminal illness, Snow died Saturday at the age of 42.
Chris was a baseball writer at the Boston Globe when the NHL's Minnesota Wild hired him as their director of hockey operations in 2006.
Chris Snow, an assistant general manager for the Calgary Flames, hugs his son Cohen as his wife Kelsie holds his their daughter Willa after throwing out a ceremonial first pitch before the baseball game between the Boston Red Sox and Tampa Bay Rays at Fenway Park, Thursday, Aug. 12, 2021, in Boston. (AP Photo/Mary Schwalm)
In 2011, Snow joined the Flames as director of hockey analysis, then became the team's assistant general manager in 2019 – the same year he received a devastating diagnosis from his doctor.
"He said this is the early stage of ALS and you think your life is over – because it really is," Snow said.
Called a "no-hope disease", ALS is a rare neurological condition that affects motor neurons.
Snow was 37 when he was told he had between six and 12 months to live.
He enrolled in a gene-therapy clinical trial and for four more years, Snow defied the medical odds.
Snow was determined to live a full life despite the terminal diagnosis, making him an inspiration to many while also shining a bright light on ALS research.
The Snow family have used their platform to raise hundreds of thousands of dollars to help find a cure for the disease, including "Trick Shot for Snowy" and "SnowyStrong."
Over the years, the disease inevitably became more aggressive, but it couldn't deter Snow from going to work at the job he loved with the Flames.
On September 27, Snow's wife Kelsie posted that he went into cardiac arrest, triggering a catastrophic brain injury.
In the days following his hospitalization, members of the Calgary Flames reflected on Snow's strength throughout his difficult journey.
Chris Snow and his family raised hundreds of thousands of dollars for ALS research
"Not once did you ever see him feel sorry for himself for what he was going through," said head coach Ryan Huska.
"I think when you talk about people looking at him as an inspiration, I don't know how you can't."
"He breathed Calgary Flames," said Flames defenceman Rasmus Andersson "He loved every second of it and as I said, he was a hell of a person, great family man and hell of a father."
A tribute to Snow was made on the ice ahead of the Flames' pre-season game against the Oilers earlier this week.
Chris Snow was 42-years-old.
He is survived by his wife Kelsie and his two children Cohen and Willa.
The Snow family: Kelsie, Willa, Cohen and Chris
Even though the battle is over, Snow continued to give back, remaining on life support until organ donations could be arranged.
Kelsie posted online Saturday night that Snow's kidneys, liver and lungs will be giving four people the gift of life.
A GoFundMe page has been set up to support the Snow family.
An estimated 3,000 Canadians live with ALS and approximately 1,000 die from the disease each year, according to ALS Canada.
With files from The Canadian Press
CTVNews.ca Top Stories

'No one else has done this on the planet': Guilbeault insists emissions cap delay is due to novelty
Environment and Climate Change Minister Steven Guilbeault says the delay in announcing details of his government’s proposed oil and gas sector emissions cap is due to its uniqueness and to wanting to get it right.
Canada has a secretive history of adoption, and some want it brought to light
In a theatre in St. John's, N.L., a murmur spreads through the audience as people timidly raise their hands. They have been asked if they saw their own stories reflected in the film they just watched -- 'A Quiet Girl.'
Minnesota grocery store clerk dies after customer impales him with a golf club, police say
A Minneapolis store clerk died after a customer beat him and impaled him with a golf club, police said. The 66-year-old clerk was attacked Friday at the Oak Grove Grocery, a small neighborhood store in a residential area near downtown Minneapolis. A 44-year-old suspect is jailed on suspicion of murder.
Tennessee residents clean up after severe weekend storms killed 6 people and damaged neighbourhoods
Central Tennessee residents and emergency workers cleaned up Sunday from severe weekend storms and tornadoes that killed six people and sent more to the hospital while damaging buildings, turning over vehicles and knocking out power to tens of thousands.
A gigantic new ICBM will take U.S. nuclear missiles out of the Cold War-era but add 21st-century risks
The $96 billion Sentinel overhaul involves 450 silos across five states, their control centres, three nuclear missile bases and several other testing facilities. The project is so ambitious it has raised questions as to whether the Air Force can get it all done at once.
'People are confused': Survey suggests Canadians need education on Charter rights
While one-third of Canadians say they have read the Charter of Rights and Freedoms, many fail to distinguish between its text and that of the U.S. Declaration of Independence, a new survey suggests.
Elon Musk restores X account of conspiracy theorist Alex Jones
Elon Musk has restored the X account of conspiracy theorist Alex Jones, pointing to a poll on the social media platform formerly known as Twitter that came out in favour of the Infowars host who repeatedly called the 2012 Sandy Hook school shooting a hoax.
Marathon Conservative carbon tax filibuster ends after nearly 30 consecutive hours of House votes
The Conservative-prompted filibuster in the House of Commons ended Friday night, after MPs spent nearly 30 hours voting non-stop on the government's spending plans.
Woman charged with manslaughter after 2 sets of young twins killed in 2021 U.K. fire
A woman has been charged with four counts of manslaughter after two sets of young twins were killed in a fire that ripped through a London home in 2021.