Flames assistant GM Chris Snow dies from ALS complications
Chris Snow died Saturday night, but he left a legacy that his family, the Calgary Flames and the city will never forget.
He was a fixture in the Flames' organization, a devoted father and husband and a driving force for ALS research.
After four years of fighting and defying the odds of a terminal illness, Snow died Saturday at the age of 42.
Chris was a baseball writer at the Boston Globe when the NHL's Minnesota Wild hired him as their director of hockey operations in 2006.
Chris Snow, an assistant general manager for the Calgary Flames, hugs his son Cohen as his wife Kelsie holds his their daughter Willa after throwing out a ceremonial first pitch before the baseball game between the Boston Red Sox and Tampa Bay Rays at Fenway Park, Thursday, Aug. 12, 2021, in Boston. (AP Photo/Mary Schwalm)
In 2011, Snow joined the Flames as director of hockey analysis, then became the team's assistant general manager in 2019 – the same year he received a devastating diagnosis from his doctor.
"He said this is the early stage of ALS and you think your life is over – because it really is," Snow said.
Called a "no-hope disease", ALS is a rare neurological condition that affects motor neurons.
Snow was 37 when he was told he had between six and 12 months to live.
He enrolled in a gene-therapy clinical trial and for four more years, Snow defied the medical odds.
Snow was determined to live a full life despite the terminal diagnosis, making him an inspiration to many while also shining a bright light on ALS research.
The Snow family have used their platform to raise hundreds of thousands of dollars to help find a cure for the disease, including "Trick Shot for Snowy" and "SnowyStrong."
Over the years, the disease inevitably became more aggressive, but it couldn't deter Snow from going to work at the job he loved with the Flames.
On September 27, Snow's wife Kelsie posted that he went into cardiac arrest, triggering a catastrophic brain injury.
In the days following his hospitalization, members of the Calgary Flames reflected on Snow's strength throughout his difficult journey.
Chris Snow and his family raised hundreds of thousands of dollars for ALS research
"Not once did you ever see him feel sorry for himself for what he was going through," said head coach Ryan Huska.
"I think when you talk about people looking at him as an inspiration, I don't know how you can't."
"He breathed Calgary Flames," said Flames defenceman Rasmus Andersson "He loved every second of it and as I said, he was a hell of a person, great family man and hell of a father."
A tribute to Snow was made on the ice ahead of the Flames' pre-season game against the Oilers earlier this week.
Chris Snow was 42-years-old.
He is survived by his wife Kelsie and his two children Cohen and Willa.
The Snow family: Kelsie, Willa, Cohen and Chris
Even though the battle is over, Snow continued to give back, remaining on life support until organ donations could be arranged.
Kelsie posted online Saturday night that Snow's kidneys, liver and lungs will be giving four people the gift of life.
A GoFundMe page has been set up to support the Snow family.
An estimated 3,000 Canadians live with ALS and approximately 1,000 die from the disease each year, according to ALS Canada.
With files from The Canadian Press
CTVNews.ca Top Stories

BREAKING Las Vegas police say suspect dead after reports of university shooting
Las Vegas police on Wednesday said they responded to reports of an active shooter on the local campus of the University of Nevada, where there appeared to be multiple victims, and then reported the suspect was 'deceased.'
'I'm so broken': Grieving family speaks out after B.C. cancer patient awaiting treatment chooses MAID
A devastated family says long waits for cancer treatment led a beloved father and grandfather to choose medically assisted death 13 days ago.
PM pans Poilievre for 'pulling stunts' by threatening to delay MPs' holidays with House tactics
Conservative Leader Pierre Poilievre is threatening to delay MPs' holidays by throwing up thousands of procedural motions seeking to block Liberal legislation until Prime Minister Justin Trudeau backs off his carbon tax. It's a move Government House Leader Karina Gould was quick to condemn, warning the Official Opposition leader's 'temper tantrum' tactics will impact Canadians.
Lawsuit accuses Sean Combs, 2 others of raping 17-year-old girl in 2003; Combs denies allegations
A woman sued the hip-hop mogul Sean 'Diddy' Combs on Wednesday, claiming he and two other men raped her 20 years ago in a New York City recording studio when she was 17.
Director behind bold and controversial TV comedies has died
Norman Lear, the writer, director and producer who revolutionized prime time television with 'All in the Family' and 'Maude,' propelling political and social turmoil into the once-insulated world of sitcoms, has died. He was 101.
Accused of improper partisan conduct, MPs expected to vote for probe into Speaker Fergus
Members of Parliament appear poised to pass a Conservative motion calling for a probe into House of Commons Speaker Greg Fergus' conduct after days of acrimony in Ottawa over what he says was unintentional participation in a partisan event.
Don Martin: Greg Fergus risks becoming the shortest serving Speaker in our history
House Speaker Greg Fergus could face a parliamentary committee inquisition where his fate might hang on a few supportive NDP votes. But political columnist Don Martin says this NDP support might be shaky, given how one possible replacement is herself a New Democrat.
Facebook parent sued by New Mexico alleging it has failed to shield children from predators
Facebook and Instagram fail to protect underage users from exposure to child sexual abuse material and let adults solicit pornographic imagery from them, New Mexico's attorney general alleges in a lawsuit that follows an undercover online investigation.
Regina man uses 3D printer to transform house into Clark Griswold-inspired Christmas display
A Regina man has made himself the real life Clark Griswold by going beyond the limits of a standard Christmas lights display.