5-year-old Calgary cancer survivor looks to inspire others for Giving Tuesday
A five-year-old Calgary cancer survivor is hoping to inspire others to act for Giving Tuesday.
Sebastian Knutson — also known as Bash — and his parents, Terra Carnie and Nathan Knutson, are raising much-needed funds and awareness for Kids Cancer Care, a Calgary-based charity that assisted them through Sebastian's cancer crisis.
The family is being joined by five Calgary philanthropists who are collectively donating matching funds raised by Nov. 30, up to a maximum of $100,000.
It was during a holiday visit to see family in Saskatchewan in 2016, when Bash was just six months old, that things took a drastic turn. A trip to the emergency room revealed Sebastian had high-risk infant B cell acute lymphoblastic leukemia and three days later, he was airlifted back to Calgary to begin a grueling treatment regime.
“It was the worst day of my life,” said Terra. “I have never felt so helpless, so overwhelmed, or so much heartache all at once. When we met with the care team in Calgary to discuss his diagnosis and treatment plan, we learned that he had a 40 to 50 per cent survival rate five years post-diagnosis. That was a blow.”
Bash spent nearly half of his first year of life – 152 days – in hospital, undergoing 57 days of intravenous chemotherapy, 49 dressing changes for his central line and more than 640 blood thinner injections to manage a blood clot that developed.
Bash also underwent six bone marrow biopsies, 10 surgeries for lumbar punctures and central line changes, 27 blood transfusions and 50 visits to the outpatient clinic along with multiple additional tests and procedures.
Now five years old, Sebastian Knutson is a survivor of high-risk infant B cell acute lymphoblastic leukemia. (Courtesy family)
While doctors worked on Bash, Kids Cancer Care worked to support the family, and now they are looking to pay that forward for Giving Tuesday.
“Kids Cancer Care was there for us at the beginning of our journey during our lengthy stay at the hospital,” said Terra.
“Their Wednesday Pizza Nights became an opportunity for us to enjoy a bit of normalcy, while surrounded by other families enduring similar circumstances. Kids Cancer Care has supported us through every stage of Bash’s cancer journey and their support hasn’t stopped because his treatment has."
His treatment may be done but his journey is not over.
More than 75 per cent of survivors or childhood cancer live with at least one chronic, treatment-related health conditions the rest of their lives.
Bash remains is at risk for graph versus host disease (GvHD), a serious condition where the donor’s bone marrow attacks the patient’s body.
And because he received chemotherapy, Bash is also at risk for secondary cancers and a host of other side effects.
CTVNews.ca Top Stories
NDP motion regarding Palestinian statehood passes after major Liberal alterations
A motion from the federal New Democrats initially calling on Canada to recognize the 'State of Palestine' passed amid widespread acrimony on Monday, after the Liberals drastically altered its wording to see the government simply work towards that aim as part of a two-state solution.
'He didn't want to die': Family of Calgary man killed in standoff speaks out
Family of a Calgary man killed after a 30-hour standoff with police last week are speaking out, sharing details of the tense and heart-wrenching experience.
Toronto family doctor who called patient's body 'perfect' suspended for 3 months: tribunal
A family doctor in Toronto has been suspended for three months after a disciplinary tribunal found that he failed to follow proper protocols while examining a patient's breasts and made inappropriate comments about her body.
Ohio mom who left toddler alone 10 days when she went on vacation pleads guilty to aggravated murder
An Ohio mother whose 16-month-old daughter died after being left home alone in a playpen for 10 days last summer while she went on vacation was sentenced Monday to life in prison with no chance of parole.
Retired teacher pleads guilty to paying for sex with 15-year-old in Collingwood, Ont.
In a Barrie courtroom on Monday, a retired high school teacher from the Niagara Region pleaded guilty to sexual touching and obtaining sexual services from a 15-year-old boy in Collingwood in 2021.
Hertz CEO out following electric car 'horror show'
The company, which announced in January it was selling 20,000 of the electric vehicles in its fleet, or about a third of the EVs it owned, is now replacing the CEO who helped build up that fleet, giving it the company’s fifth boss in just four years.
5 charged in Calgary kidnappings that targeted women
Calgary police have charged five men in a pair of kidnappings last year that targeted innocent victims.
Demand soars for solar eclipse glasses in Canada. Are they worth buying?
The demand for total solar eclipse glasses used to safely view the rare celestial event has been ramping up as sellers, along with astronomy and eye-care experts in Canada, warn that viewing the eclipse with the naked eye is dangerous.
Canadian commander of volunteer fighter group dies in Ukraine
A Canadian-born commander of the so-called Norman Brigade, a volunteer fighting group in Ukraine, has died.